08 Feb 2019

Clozapine is very dangerous, and needs close monitoring. My son (16 years old) was on it and the doctors at Greater Glasgow and Clyde Mental Health unit failed to monitor his bloods as protocol. They red alert went unobserved and 5 days after the alert the Doctor withdrew him altogether from Clozapine. He should signs 10 before with an Amber alert and they were suppose to monitor his blood twice weekly which did not happen. Anyway Christmas and New Year bank holidays were more important to his circle of medical care. He ended up doing really well on Clozapine until neutrophil levels were a concern and they withdrew administrating the medication 5 days after the alert causing him to go into supersensitivity Psychosis and was the most dreadful effects I have ever seen, He was catatonic at one stage, could not toilet himself, unaware of his surroundings, bizarre behavior. It is now 5 weeks from this happening and they still have not been able to stabilize him and immediately starting titrating him on Amisulphride (no real effects) and giving him Olanzapine when required. My advice to everybody would be to be more aware of doctors and how they actually do monitor patients. Looking at the bigger picture of the circle of care involved in your care as an inpatient on Clozapine ie the Pharmacist, Patient Monitoring System (Pharma Company). Consultants, Inpatient Charge Nurses and Hospital Laboratory all involved in the administration and monitoring of patients all failed to monitor my son and his Blood Alert. - You might be told your in save hands - MAKE SURE YOU ARE! and investigate how they are monitoring and looking after your blood results - SHOCKING! but true personal story.

—Posted by Anonymous

18 Mar 2018

I am a 35 year old male and suffer from schizophrenia. Clozapine has been able to help me significantly. I have not had any major problems with it impacting my white blood cell count. The only down side is that the drug has left me with some urinary incontinence and as a result I wear a diaper or a mens incontinent brief from time to time.

—Posted by Anonymous

17 May 2011

Clozapine was prescribed after 3 other atypical meds failed to perform. I must state that the previous medication were not give amble time to determine their effectness. When I asked the doctor why did he not wait before he prescribed clozapine he shouted at me DO YOU WANT YOUR WIFE WELL OR NOT. His aggorance was unprofessional. In fact when he released her from the hospital I had no idea she needed blood test. His main goal was to get her out as soon as possible. To this day I think other meds could have served the same purpose if they would have treated her for a longer period of time. This has been a nightmare for both my wife and myself and by the grace of God and being married over 50 years has enable us to battle this disease.

—Posted by mcmurphy